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May 23 2013 04:32 PM

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Do you tell people that you have dyscalculia?





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Finally!!
Pirullinen
#1 Print Post
Posted on March 26 2011 02:52 PM
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Location: Copenhagen, Denmark
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Oh my god!
I just got the new today that my application has been approved! I'm getting tested!
This is amazing!

I can't wait! I'm so happy!!
Hopefully the test will give me some form of diagnosis and not tell me that I'm just stupid...
Pretty nerve wrecking!
Gotta talk to my caseworker on Monday to schedule the test - awesome! I have to go all the way across the country to do the test but that's alright, a test and a trip! Grin
Edited by Pirullinen on March 26 2011 02:53 PM
 
squeakymonster
#2 Print Post
Posted on March 26 2011 04:53 PM
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Location: Munising, MI, USA
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It's the waiting that's the worst. I had my testing done and now, I'm waiting for my results. I wanna get them. I hate waiting: waiting to see if I could get my testing, waiting for the test date, waiting for the results... waiting, waiting waiting! It's enough to drive anyone crazy! Pfft
I'm NOT lost, I'm just taking the scenic rout!
 
justfoundout
#3 Print Post
Posted on March 26 2011 05:55 PM
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Location: Texas USA
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3/26/11
Hello again, Pirullinen!
That's great news that you'll soon be tested.

What you said here 'struck me funny'. You said, "Hopefully the test will give me some form of diagnosis and not tell me that I'm just stupid... " I thought how I would have felt after all that testing, to open the Report and see, "We regret to inform you that you are just stupid." <chuckles> I'm sorry, but <lol> it really does make me laugh out loud. Thanks for keeping us 'in the loop', and please let us know how it goes. - jus'
Edited by justfoundout on March 26 2011 05:57 PM
 
RottieWoman
#4 Print Post
Posted on March 29 2011 12:58 PM
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Happy for you, Pirullinen!
YAY! Yeah - let us know what happens!
:)
 
ert
#5 Print Post
Posted on March 29 2011 02:54 PM
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That's great! Could you send me a private message with info on where and how? Just the details you would want to share, of course. Always looking for tips for people to get help here in Denmark. Also, congrats on the book - read that in another post the other day! What is it about?
 
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Pirullinen
#6 Print Post
Posted on March 29 2011 04:49 PM
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Location: Copenhagen, Denmark
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Yep I'll do that Wink

It's kind of a strange mix of different things, but to sum up it's about a group of homeless kids in a fictional version of New York City, and how they get on and find their way back to their families, but first they have to battle reality and that ha ha
It's loosely based on/inspired by 'Peter Pan and Wendy' by J.M. Barrie
 
RottieWoman
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Posted on March 29 2011 06:45 PM
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intriguing, about your book!
Smile
 
Kestrel6
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Posted on March 30 2011 03:17 PM
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Awesome! good luck, and keep us posted!
Blessed are the PURR in heart!
 
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Pirullinen
#9 Print Post
Posted on March 31 2011 01:53 PM
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Location: Copenhagen, Denmark
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So I just got the date today, getting tested on april 14th. Exciting!
 
squeakymonster
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Posted on March 31 2011 02:01 PM
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YAY!!! Good luck.
I'm NOT lost, I'm just taking the scenic rout!
 
Pirullinen
#11 Print Post
Posted on April 14 2011 02:33 PM
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Location: Copenhagen, Denmark
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Hi guys! I'm on the train on my way home from my test. It went well I think, and I was surprised to find that my working memory is incredibly poor! I'll give you the full story when I get home! Smile
 
RottieWoman
#12 Print Post
Posted on April 14 2011 05:05 PM
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wow, so excellent PirullinenSmile
look forward to reading about your experience-
 
Pirullinen
#13 Print Post
Posted on April 14 2011 07:00 PM
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Location: Copenhagen, Denmark
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Right so now I've had time to process today's experience Smile

I had to do a lot of different test sheets and and some basic math questions. The lady who tested me was really, really nice and friendly and I was really nervous going in because I didn't know what to expect. She told me that they didn't know how to test me because they had never really tested someone with issues like mine before, so she had so many different things we had to talk about. Anywho, that was good because I wanted them to be as thorough as possible.
I had to do +, -, / and * questions, but I could only do the ones that I could work out in my head, because I don't know how to work things out on a piece of paper - I simply don't know how. She also had me do an IQ test which was kind of funny because I took one a few years ago and it told me that I had a below average IQ Grin and I did a soduko puzzle as well.
She told me that I probably have a general problem with visual processing, that's why I can't tell the time Grin and she also told me that I have a problem with remembering things. I can only remember four numbers in a sequence...

I have to say I thought it was a strange experience. I'm glad I did it, but I feel sort of depressed that my memory is that bad. She said I would probably have a hard time getting my head around grammar which is the reason I wanted to get tested in the first place.
She's gonna make a detailed report and send it to me, then she would send a copy to my university.

I don't know, I think I still need a few days to fully understand everything. But I'm glad it's over and I hope everything is gonna work out now
 
justfoundout
#14 Print Post
Posted on April 14 2011 11:21 PM
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Location: Texas USA
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4/14/11
Dear Pirullinen,
I'm so glad for you that you've gotten that done, and that you got a friendly lady as the person who did you testing.

I have the same memory problem, and yes, it does reduce my grammar and my spelling from what I think that it should be, considering my aptitude for learning languages. But take heart! You'll probably still be better at grammar and spelling than the general population. On some aptitute tests that I took in Junior High School, my grammar score was at 85 and my spelling was at 70, yet my 'reading and verbal' was about 98. But nowadays, almost all my friends ask me to proofread their resumes before they send them out. One lawyer friend that I have speaks very good English, but isn't a native speaker. He 'made my day' telling me that, to him, I'm his 'supreme authority' on English grammar! Yeah, I know. He was getting his resume proofread 'for free', but still, it 'made my day'. And you'll do the same thing, even with that memory deficiency. Grammar is much easier than algebra. I'm so glad for your progress. - jus'
 
Pirullinen
#15 Print Post
Posted on April 15 2011 11:47 AM
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Location: Copenhagen, Denmark
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Jus: I was so glad to find that she was so friendly!
I was so scared that she was gonna be really critical and mean Pfft

My spelling is very good, but my grammar skills are incredibly poor. I know which words sound best, and my English is as close to fluent as it'll ever get, but that is because I lived in the UK for a while - I can't explain why I choose the words I choose - and that's a problem because that's exactly what I have to do to pass my exam Frown
But you are right, people already come to me with things that they want proofread and I don't even have my degree yet Smile

I was really depressed last night. Strangely enough I felt like my self esteem had taken a blow even though I already knew I had a problem Cool
I know lots of different things and I know that I am really intelligent. I just couldn't see that last night. I don't need to be good at maths to be a good person, it's not a quality, just a skill.
I'm really happy that I got tested, because now I feel like I can get some help so that I can move forward with my education and my life Wink

 
ert
#16 Print Post
Posted on April 15 2011 02:20 PM
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I'm so glad to hear you got tested. All dyscalculics have problems with working memory, in different forms and degrees.

Don't feel freaked out that you feel all sorts of things right now - it's normal!

I really believe we go through some sort of period like the grief stages (denial, anger, bargaining, depression, and acceptance) when we find out about dyscalculia, try to get tested and finally get diagnosed. Even more intensified the older you are when you find out it even exists. But not quite like the grief stages, as I rarely meet people in a stage of denial and bargaining (although maybe, because these people would never come here and ask for help) (but I do think that some parents are in the grief stages when they have a hard time accepting that their child has dyscalculia). From all the people I've talked to over the years, I believe it goes something like: shock, relief, anger, depression, relief again, and hopefully acceptance in the end. The acceptance stage seems to only appear when you are getting the appropriate help to conquer and cope with dyscalculia. All the stages are topped with a huge amount of confusion, because of the major lack of information and help.

Stages like this is rarely a "one size fits all" and we can go back and forward throughout life. I think I'm stuck in "anger" (because of the lack of help) and "relief" (because I now know it's not stupidity and laziness). Outsiders can rarely understand what it does to a person. It's "just problems with numbers", you know. But we know it affects everything we do. Including grammar.

I'm the same with grammar. Can't remember grammar rules and the semantics of it to save my life, I just know what's right.
 
http://www.facebook.com/mettechristoffersen
justfoundout
#17 Print Post
Posted on April 15 2011 11:36 PM
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Location: Texas USA
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4/14/11
Pirullinen,
Are you doing a degree in English?

Ert,
I was an older adult when I found out about dyscalculia and was just 'happy' to find out what the problem had been. Really, really happy. ;)

All - I'll be doing Spanish Grammar this Summer as my first-ever class at a 4-year college,... and hoping that my GPA won't plunge. - jus'
 
Pirullinen
#18 Print Post
Posted on April 17 2011 08:14 AM
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Location: Copenhagen, Denmark
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Jus: Yep, a bachelor degree, but I'm only halfway through, I'm taking some time off from school at the moment to pursue a "writing career" instead Smile
If I can't get through grammar, I'm not sure I want to spend another two years struggling if it all falls through in the end
- but you never know. I have to wait for my test results and get my head around that before I make any decisions
 
Edelweiss
#19 Print Post
Posted on April 18 2011 08:58 AM
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Location: Switzerland
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Hi Pirullinen
I can definitely relate to what you are telling... When I got tested last summer, the lady told me that she had never any testing for dyscalculia. She also said that I had a problem with working memory and things like addition/substraction and mathematical reasoning (doing problems). Right now I don't know what to do with my test results... I'm a bit lost actually as there is so few people that know about it, even the specialists.
And ert, I can relate to what you say too, with different stages. There are days when I feel really like I can do it with this disability and others when I feel like depressed for the things I cannot do. But in general I'm feeling much better and lighter and than I used to feel when I was in high school (I'm working in a bookshop now.)
 
justfoundout
#20 Print Post
Posted on April 18 2011 08:21 PM
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Location: Texas USA
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4/18/11
We do so well at learning languages, and sound great, but the 'grammar' turns into a nitty-grity sinister mass that is difficult to untangle sometimes. I'm only minoring in Spanish, even though I'm fluent in it, because I don't want to have to learn the upper level grammar. I'll Major in 'art' and give my brain a rest. - jus'
 
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